Community-based organizations (CBOs) play a vital role in supporting individuals and families affected by sickle-cell anemia with a focus on education and awareness, support services, access to healthcare, advocacy and research funding. These efforts help improve the quality of life for those impacted by the disease.
Here are some regional CBOs dedicated to sickle-cell anemia:
A Precious Organization
Tammy Smith founded A Precious Organization for Sickle Cell in Illinois in 2013. The nonprofit’s mission is to provide moral support, counseling, community meetings and financial assistance for those affected by SCD and advocate for a cure.
Sickle Cell Association
The Sickle Cell Association is a not-for-profit organization that strives to diminish suffering and improve the quality of life for those individuals affected by sickle cell disease. We are committed to raising the public’s awareness and providing education to patients, their families, health professionals, legislators and the general public about sickle cell disease, its management and its challenges.
Uriel E. Owens Sickle Cell Disease Association of the Midwest
Sickle Cell Disease Association of the Midwest was established in 1981, in honor of Uriel Owens, a Kansas City civic leader who suffered from sickle cell anemia. The organization was founded by his family and friends to assist sickle cell patients and their families and to educate the community about the disease. Today, the association continues Owens’ legacy by providing support and raising awareness about sickle cell disease.