St. Louis Children’s Hospital
St. Louis Children's Hospital is one of the premier children's hospitals in the United States and has cared for children for more than 130 years. The hospital provides a full range of pediatric services and has a primary service region covering six states, serving children from St. Louis, throughout the region and across the world. Children's Hospital ranks in all 10 U.S. News & World Report pediatric specialties, and Parents magazine ranks it among the best pediatric hospitals in the nation.
Sickle Cell Disease Program at St. Louis Children’s Hospital
The Division of Pediatric Hematology/Oncology at St. Louis Children's Hospital actively cares for more than 350 infants, children and adolescents with sickle cell disease and sees approximately three patients per month with a new diagnosis of sickle cell disease.
The St. Louis Children's Hospital Sickle Cell Program Team includes pediatric hematologists, a pediatric neurologist, a nurse practitioner, nurses, a social worker and a data manager. Together, this multi-discipline team provides not only medical care but also other services to meet the many needs of children with sickle cell disease and their families in the St. Louis metropolitan area.
All newborns in the St. Louis metropolitan area identified through the mandated state newborn hemoglobinopathy screening are referred to this Program. Many of these children are seen by providers of the Sickle Cell Disease Program so that providers can help parents understand the diagnoses and genetic counseling, and to establish a strong parent, nurse and physician relationship.
- The division operates as a regional referral center for children with sickle cell disease.
- In recognition of its outstanding level of care by the State of Missouri, the division was awarded a grant to provide direct medical care and genetic counseling to children and families with sickle cell disease.
- Patients with complications associated with sickle cell disease—such as patients with strokes, multiple painful episodes and multiple acute chest syndrome episodes—are closely followed by the division.
- Routine pediatric care is performed by the patient's primary care physician, not the division.
Monica L Hulbert, MD
Dr. Hulbert is a Washington University pediatric specialist and serves as the director of the Sickle Cell Disease Program at St. Louis Children's Hospital. As a hematologist and oncologist, she cares for children with blood diseases and cancer.