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Advocacy

Missouri SCD State Action Planning Initiative

Organize a dedicated coalition seeking to empower Missourians to improve statewide awareness, education and evidence-based care.

Education

Sickle Cell Disease TeleECHO Clinic

Connecting local clinicians with experts to learn skills necessary to deliver high quality care using this proven telementoring model.

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COVID-19 and SCD: Navigating Change

Education

Guest speaker, Dr. Rayne Rouce, physician at Texas Children’s Cancer and Hematology Center in Houston, Texas and Assistant Professor in the Department of Pediatrics at Baylor College of Medicine.

Houston Sickle Cell Advocacy Summit 2022

Advocacy

The Houston Sickle Cell Collaborative hosted their Advocacy Summit on October 27, 2022: Speaking Truth to Power.

Kevin’s Story

Advocacy

Kevin Wake, patient advocate and President of the Uriel E. Owens Sickle Cell Disease Association of the Midwest shares about his personal journey with sickle cell disease in this powerful video.

Missouri Sickle Cell Disease State Action Planning Initiative

Advocacy

To organize a dedicated coalition of key collaborators to equip and empower Missourians about sickle cell disease and trait to improve statewide disease awareness, education, and evidence-based care delivery.

Sickle Cell Disease CME Lectures: September 2017

Education

The following lectures were presented as part of a Continuing Medical Education course at Washington University on September 15, 2017.

Sickle Cell Disease TeleECHO Clinic

Education

TeleECHO connects local clinicians with experts from sickle cell centers to learn skills necessary to deliver high quality sickle cell disease care using this proven telementoring model.

Sickle Cell Resources

Education

A collection of resources categorized by topic, arming patients and care givers with the knowledge needed to make the informed decisions.

Sickle Cell Videos

Education

Collection of videos on topics of living with sickle cell disease.