As a partner with Heartland Sickle Cell Disease network, you will receive a link to the Partner site via email. You may then complete your partner profile and access information and data. Only Heartland Sickle Cell Disease Network partners and providers may access this part of the website. For information, contact Regina Abel.
Our team participates in several national research studies with other sickle cell specialists around the country. In recent years, this has included:
Currently we are enrolling subjects in the DOVE Study, “Determining effects of platelet inhibition on vaso-occlusive events," Protocol H7T-MC-TADO, a Phase III, Double-Blind, Randomized, Efficacy and Safety Comparison of Prasugrel and Placebo in Pediatric Patients with Sickle Cell Disease. This study is sponsored by Eli Lilly and Company/Daiichi-Sankyo, Ltd.
We have recently received IRB approval to begin subject enrollment in the HU Prevent Study, “Hydroxyurea to Prevent CNS Complications of Sickle Cell Disease in Children."
We also partner with community organizations such as Turning Point, the Center for Hope and Healing to provide AYA educational and social activities throughout the year in addition to our annual week of summer camp known as Camp Courage for individuals aged 6-14 years.
Division of Pediatric Hematology/ Oncology Sickle Cell Disease Program – At Children’s Hospital of St. Louis
One Children’s Place
St. Louis, MO 63110
Pediatric Care: (314) 454-6018 or (800) 678-5437
Hospital Hill Sickle Cell Disease Treatment – At Truman Medical Center
2301 Holmes Street
Kansas City, MO 64108
Adult Care: (816) 404-4290
Internal Medicine/ Hematology Center for Advanced Medicine – At Washington University in St. Louis
4921 Parkview Place Suite 7B
St. Louis, MO 63110
Adult Care: (314) 362-7578
St. Louis - Washington University/St. Louis Children's Hospital
A clinical trial to evaluate treatments using CD34 selected T-cell depleted allogeneic SCT for patients with Sickle Cell Disease
Washington University School of Medicine
in St. Louis
Campus Box 8505
4444 Forest Park Ave.
St. Louis, MO, 63108-2212