Sickle Cell Resources


Hydroxyurea education for patients


Treating sickle cell disease: Is hydroxyurea right for your child?EnglishSpanishFrench


Treating sickle cell disease: If hydoxyurea right for you?



Collected educational booklets for families, health care providers, and educators.

National organizations

Sickle Cell Disease: Centers for Disease Control and Prevention (CDC)

Sickle Cell Disease Association of America (SCDAA)

Sickle Cell Information Center

American Sickle Cell Anemia Association (ASCAA)

Sickle Cell Anemia: Mayo Clinic

American Society of Hematology

National Institute for Children’s Health Quality (NICHQ)

CDC resources

Fact Sheet: Get Screened to Know Your Sickle Cell Status
Learn why and how to get screened for sickle cell trait.

Fact Sheet: Sickle Cell Disease
What you should know about sickle cell disease.

Fact Sheet: Sickle Cell Disease and College
Nine steps to living well with sickle cell disease in college.

Fact Sheet: Sickle Cell and Pregnancy
What you should know about sickle cell disease and pregnancy.

Fact Sheet: Sickle Cell Trait
What you should know about sickle cell trait.

Infographic: Get Screened for Sickle Cell Trait
Did you know there’s more than one way to inherit sickle cell trait? Learn how it is inherited.

Tip Sheet: Supporting Students with Sickle Cell Disease

Toolkit for Living Well with Sickle Cell Disease

Living Well With Sickle Cell Disease
People with sickle cell disease can live full lives and enjoy most of the activities that other people do. The following tips will help you, or someone you know with sickle cell disease, stay as healthy as possible.

Five Tips to Help Prevent Infection
Common illnesses, like the flu, can quickly become dangerous for a person with sickle cell disease. The best defense is to take simple steps to help prevent infections.

Emergency Guide: When to See the Doctor
It is very important that every person or family with a young child with sickle cell disease have a plan for how to get help immediately, at any hour, if there’s a problem. Be sure to find a place that will have access to your medical records or bring a copy.

Sickle Cell Disease National Resource Directory
The Sickle Cell Disease National Resource Directory is a compilation of national agencies, state-based health providers, and community- based organizations that provide services and resources for individuals and families affected by SCD.

Local organizations and resources


Browse our collection of helpful SCD videos.